Hi
I use a TENS machine occasionally and I tend to use in on a few specific places when they get really bad. I also went to have a chat with the physio to talk about how to use it as I thought the instructions were a bit vague about that. I find that the pulse mode works best for me, on some of the others I kept having to turn it up every few minutes. I use it for about an hour at a time, after that it gets uncomfortable.
The TENS machine should never be painful to use, mine says to keep it on the setting beow that which is painful. I know that some programs suit some people better than others, and it took me a while to find one that works best for me/
I too have had a few

moments with it,
The best was when I had it on the back of my left thigh, and I went to the loo. Sitting there, I noticed that one of the pads was peeling off, and went to put it back in place. You've guessed it, I touched it on the gel pad and my hand jerked back, taking the pad with it. So there I am sitting on the loo going WAAAAAH while looking in horror at my left hand. Without thinking I peeled it off with my right hand so then I was sitting there going WAAAAAAH while looking in horror at my right hand. It was only then that I remembered to turn it off. As if that wasn't enough I came out of the cubicle to find two of my workmates in stitches having heard everything.
That aside, I do find the TENS machine helps me at times. Sometimes, I find it can give me enough time to do something I really want to do, and at times it let me stay in work when otherwise I would have to go home. It doesn't work on all my pain, only certain ones, but I wouldn't be without it.
Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!