Pain Management - Bath/Stanmore/RNHRD

[sheppeyescapee]

I'm worried that because my POTS is by no means under control that I wont be able to go to stanmore My GP is chasing them up about the testing. Hoping they will still take me.

[ciderpig122]

Just got back from Dr Cohen, she's LOVELY!!!!!!!

Awaiting A pre assessment appointment now and if my PCT say its OK I can go in for a 3 week stay.

She said estimated times are 4 months to pre assessment (hopefully less) but another 4 to the 3 week stay. Just gotta hang in there until its time now.

She's a lovely lady, wish all docs and specialists were like her, she liked my tattoos and I made her and the lady in there squirm with my bendy thumbs ROFL haha

[trekster]

Hope they can still take you Sheppey, maybe that would just indicate to them that you need it more than you did when 1st referred?

[Timeweevil]

My GP has referred me to Pain Clinic at Frenchay in Bristol. He said he would refer me to Bath if I liked as a patient with EDS found it helpful.

What do you guys think? Should I get referred to Bath? I'm already under bristol for my physio.

Karen x

[star gazer]

Hi sheppey< if you have already been referred to stanmore and had your pre assessment you should be ok, you are due to go soon aren't you so they would have said before now if there was a problem with you going. My ortho man at the local hospital has started talking about me going to stanmore so when i see he at follow up in three months I will talk to him about it some more, he was keen for me to go saying it was fantastic and mentioned acouple of doctors their who are lovely.
I hope all goes well for your stanmore trip and that you hear soon from nhnn.
best wishes
sg

[star gazer]

Hi timeweevil, I am sorry I don't know anything about those two places but I am sure that others here have had access to both and will reply to you soon.
best wishes
star gazer

[Englishgremlin1]

just had my letter for a pre assesment visit in Feb. things are movong.

[juliepops]

I'm so excited !!! Got my date for rehab at stanmore - 8th May
Bit of a wait but prob because we had to say not in march cos my hubby is in motor industry & they can't take leave in a new registration month. He's going to have to take some half days for getting me there & picking me up each week.
After the pre admission assessment I felt this was the right thing for me to help me start improving and managing things more effectively. I can't wait to just get on with it now!

sending hugs to everyone whatever stage in the process you are

Ciderpig can't agree more about Dr Cohen she's amazing!

Julie

[trekster]

Congrats and good luck

[Rosie]

Hi all

I had my first appointment at Stanmore on Monday. I saw Dr Cohen, and accompanying person (missed who she was ). She was very thorough, I think we covered most symptoms although, as usual, I remembered a couple fo things after I left. She scored me higher than everyone else, said my elbows were hypermobile when i thought they weren't, but I must admit I can't actually see them that well so will take her word for it. Come to think of it, I have always said they weren't when asked so no one else had actually looked at them! The only thing I can't do now is get my hands flat on the floor when bending forward, and I am convinced that is only because my stomach gets in the way!
Sh also sent me for blood tests, including for vitamin D levels, and for X-rays of my hands, lower back and pelvis. I saw her again after the X-rays and she is happy with what she saw, so is recommending me to the rehab team for assessment for the in-patient stay. I know it will take a while, but I am prepared to wait, just happy to know that things are moving in the right direction.

Rosie

[Englishgremlin1]

That is very interesting to me Rosie about the scoring. Previously doctors have scored me are currently five or six but she scored me at eight out of nine because she included my spinal Hypermobility and some other joints as well.

She was on her own when I met her but I really did find her very helpful and very understanding.

[Rosie]

Hi EG

Yes, I found her very approachable, had a bit of a laugh with her as well, so worth the trip and all round a good experience. She also commented on my neck hypermobility and my spine, and showed me my x-rays and pointed out some probable but not major issues.

Rosie

[Englishgremlin1]

my pre admission assesment date has come through Feb 10th, anyone else going for it on that day? Say hello if you are.

[ciderpig122]

woooooo! exciting isnt it!!!!! im on the 24th of Feb

[ciderpig122]

it would be nice if some of us were in for the 3 weeks at the same time!