Collagen Deficiency

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Re: Collagen Deficiency

Postby barkingmad » Sun Jan 25, 2009 9:29 pm

Hi the short answer is no, supplements can not be successfully added to your diet and then work on fixing the collagen problems associated with hms. You may find more info above. Take care Donna :D
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Re: Collagen Deficiency

Postby radoxme » Tue May 08, 2012 1:06 pm

Let me tell you that eating gelatin in sweets or broth or added to anything is a great help.

I played either in the scrum and find it is fab for my injuries.
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Re: Collagen Deficiency

Postby Rosie » Wed May 09, 2012 9:50 pm

Hiya

Radoxme, do you have HMS/EDS-H. Do you know how eating gellatins works to help your injuries?

Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
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Re: Collagen Deficiency

Postby radoxme » Sun May 13, 2012 4:34 am

I do not have full blown hyper mobility. However my joints are above average flexibility for a man. When I was20 I was told I did have it by a physio. Now I am38 my joints are less flexible and a rheumatic doctor said I did not have it quite.

I think the gelatin or broth supplies the nutrients to strengthen the joints. It replaces cartilage.
It is not rocket science. We used to eat broth for thousands of years. Now in our fast food world we miss out on this valuable top up and our bodies break down.

Just like muscles need animal muscle to recover from use joints have evolved to need animal joint products. We have just forgotten it hence the epidemic of arthritis.

Obviously looser more risky joints need this renewal all the more.

That is my feeling anyway.

It takes a number of months to fully heal the cartilage.

Perhaps with the gelatin resumed a number of people with HMS would no longer have a condition of pain.
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Re: Collagen Deficiency

Postby Rosie » Mon May 14, 2012 12:22 am

Hiya

Radoxme, the problem with Hypermobility Syndrome (HMS) or Ehlers-Danlos Syndrome - Hypermobility type (EDS-H) is that the body's template for building colagen is faulty, resulting in body tissues like ligaments, muscles, tendons and others, that are over stretchy, and it is this that cause the hypermobie joints. It is hard to see how eating gelatin or nutrients can affect the template that the body uses to make colagen.
It does make sense to maintain a healthy diet, and exercise can play a major part in strengthening our joints and muscles, but the problems with colagen can also affect healing, meaning that injuries can take a long time to heal. In turn this also make sthem more prone to pick up infrctions as wounds are open longer. It is not like this for everyone with this condition, as per usual HMS/EDS-H affects us all indiviaully.

Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
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Re: Collagen Deficiency

Postby radoxme » Mon May 14, 2012 2:58 pm

I am not saying exercise.

If you supply all the collagen the body could want it is there when the body does need it. Further as the cartilage has more stress due to a wider range of movement supplying the blocks to maintain the cartilage is essential.
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Re: Collagen Deficiency

Postby barkingmad » Mon May 14, 2012 5:58 pm

Hi Radoxme,

I am afraid it isnt as simple as you state and I truly wish it was because then none of us would have any issues.

There are different types of collagens involved which are made by the body as they are genetically imprinted to do so. No amount of eating certain foods will alter how 'you' produce collagen or cartilage. What you have is basically what you get! Until they understand in full detail how to change the way we produce faulty collagen we will be stuck with what we have. There is also some conflicting reserach on whether HMS means that your cartilage will definitely be more prone to problems due to increased ROM.

On saying that; following a healthy balanced diet can help the body to repair itself and provides the energy needed to encourage our bodies to be healthy...and some deficiency's are well known to increase chronic pain and cause nerve damage...

Dont forget that HMS isnt necessarily down to faulty collagen it can be down to other issues; it just depends on the individual. Some HMS's are genetic and collagen is involved, some are genetic and have shallow sockets...add in some with poor proprioception and often all of it together and as usual nothing to do with HMS is easy! :bye:
barkingmad (Donna)
HMSA SENIOR MEDICAL LIAISON OFFICER/ ADMINISTRATOR
Retired RMN, HEDS, Fibro,
3 children,
eldest son, HEDS, dyspraxia, IBS, ADHD, ASD
middle son, HEDS,
youngest daughter HEDS, dyslexia
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