Hormone medications & HMS

[Sparklysazza]

mod edit - nested quote of previous posts removed as not needed

Oh really? Now, that is interesting! I'll have to see if I can do some research on that before I next see her. Thanks!

[kerrylouise37]

I am sooo glad I've seen this post! I have been off work for 2 weeks already and have been to the osteopath 3 times this week all because my pelvis is so unstable and my SI and LS joints are damaged, all of this happened recently and all after I had the implant fitted a month ago! When I saw this post it all clicked and I now have an appointment with the doctor tomorrow to discuss either having a combined pill on top of the implant or to have the whole thing taken out and go onto just a pill! I'm so sure this is whats caused my back pain and I'm so glad I saw this post or I never would have seen the link!

[greige]

Last month I stopped with my 6 months of progesterone therapy... and since then my joints are achy.. last Friday was the worst so far. I know that according to the lit. HMS is supposed to get worse with progesterone, but I had not much problem with progesterone..in fact my mood was better. Does any of one have the same experience?

[Retro]

Hi Griege,

I love my implant to bits. I can't say I've noticed any difference in my bendyness while I've been on it, the previous version of it or the Depo Provera injections! My moods are absolutely awful without it tho'.

Lindsey

[mazza111]

hmm. Got me wondering now, daughter was absolute terror to live with when she was hormonal. 15 years old, pill, then depo injections, now she's got the implant. She loves it, but also wondering if this has anything to do with her bendiness getting worse, probably not. The only problem with the implant was the bruising she had to get it replaced a couple of months ago, other than that she's been great on it.

[greige]

Glad to hear some people has the same experience. My only problem with progesterone was in the 1st month my eczema got worse, when I changed to other kind of progesterone and it was fine. better mood, practically no joint problem. As soon as I stopped, my ulcer is getting worse which I thought it was stress due to deadline, bad mood, weird dreams, joints pain. I was at the osteo doc this evening, he asked who gave me progesterone, told him my OBGYN whom I've already gave copy of part of Prof. G's book on OBGYN. He said with progesterone one needs to be careful as the result is not always the same. anyway.. he gave me some meds for my back as it is hurt to sit/sleep/stand and a bit swollen & tender and I was told to do xray if it is still persist after one week.

[kerrylouise37]

The implant was horrible for me! I had it taken out on friday as I'm nearly certain it's the reason my pelvis was soooo unstable!! I was also foul on it SInce having it out I swapped to Yasmin, which I was on before with no problems and has a different type of progesterone in as well as oestrogen so hopefully it will sort me out! The doctor who took the implant out was fascinated with the effect it seemed to have on me and said if I didn't mind she wanted to look into it further and was going to contact me when she had any further info on how the hormones could affect us bendy people! Was happy she took me seriously!

[Dweeb69]

Really glad I found this thread - GP had suggested I have the mirena coil. I can go back armed with some useful information about its affects on my HMS

[Rosie]

Hi all

Dweeb, the Mirena coil is slightly different to having progesterone inthe pill, jab or implant. The Mirena coil does release progesterone locally, ie into the womb, but it is at a low dose, and should not get into the blood stream. The pill, jab and implant all rely on progesterone being carried around the body in the bloodstream, allowing the progesterone to prevent ovulation. With the Mirena coil, it works the same way as any other coil, but has the added local progesterone release. For me this has been brilliant, with no periods for the last 13 1/2 years (I am on my 3rd Mirena), and no apparent affect on my HMS/EDS-H. I know that not everone has been this lucky, but worth considering or trying, if progesterone is needed.

Rosie

[Dweeb69]

Thanks For the really helpful reply, Rosie.

I'm still not sure whether to go for it- I know lots of non-HMS women who have it & say it's the best thing ever, but the thought of it making my symptoms worse seems like a bit of a risk - I guess the effects would be quickly reversed if I need to have it removed?

[Rosie]

Hi again

I have only had them removed when their time is up, so to speak, and I had another one fitted at the same appointment, so not sure about that. However, as there is less (if any) progesterone getting around the body, I would think that any affects would wear off quicker than from the pill. I know that ferttility is expected to retrun to normal pretty quickly when the mirena is removed.

Rosie

[Retro]

ok...now I'm not so sure that this new implant isn't making a difference. I know that there are different "versions" of progesterone and there are a few minor differences between this new implant and the old one...this one's a bit stiffer and has barium in it so it shows up on x-rays and I'm sure my GP said the hormone was different. Depo's a non-starter for me because I got the implant because I'd been on it for so long already.

Sometimes with these things it's a no win situation for us - slightly more bendy + extra pain + level hormones v less pain + "she devil" in my case. Am going to discuss with my GP on Thursday so I'll feed back here (if I remember).

Lindsey

[Mamacita]

I am exploring the relation of hormones to ligament laxity. I am on HRT (biodientlcal) and wonder if my continuing high doses of Estrogen and Progesterone contribute.
An interesting article by Howard Bird, University of Leeds, UK..HORMONAL ASPECTS OF HYPERMOBILITY.
Definitely worth a read. Discussion of relaxin during pregnancy, and connection to Progesterone (not so much estrogen)

Would love to get feedback.

[Retro]

Hi Mamacita,

Professor Bird is one of our medical advisors and the leaflet is available from our online shop

Lindsey

[Mamacita]

Hi Lindsey,

Thanks for the info. I had not yet perused the site (was delighted to find it!!) when I posted.
I will introduce myself in a following post.

Mamacita